With the modern-day explosion of health data, we are witnessing a fast-rising number of disconnected solutions, data silos, and varying opinions on how to best integrate the oceans of information. There are evolving discussions at societal level on what is considered acceptable regarding how these data should be used. Even if the discussions are productive, it is still questioned whether we have practical and robust technologies to enable those ambitions. Are technology developers keeping track of what the society will accept? Or are they trying to chase the mythical unicorn of health-data solutions - that is pure and perfect, but unattainable?

 

Workshop goal

We provide a platform for health-data stakeholders to:

• discuss the practical aspects of privacy-preserving distributed computing;
• review the types of problems that can be addressed;
• assert and challenge expert opinions;
• discuss existing solutions where applicable.

Emphasis will be placed on the 'perception' of patient privacy and the means of quantifying its preservation, with minimal impact on data useability.

The interactive program will tackle the basics and promises of federated learning, as well as the complexities of this quickly growing field and the challenges it faces. The thought-stimulating talks and panel discussions will cover innovative areas such as technology transfer into real-life application, legal and value considerations, and the relevance of performance benchmarking of the solutions offered.

 

Target audience

Do you have an interest in analysing and/or storing health data, and do you want to do so in compliance with international norms? Then this event is for you! It is not only aimed to inform technical professionals, but also to provide answers to the strategic level, while educating and inspiring the next generation of health-data professionals. Whether you are working in academia, pharmaceuticals, medtech, biobanking, policy, data privacy, patient organisations, IT, law, ethics, or any other field you and your viewpoint are welcome and encouraged to take part.

Join us and be part of "share without sharing" study! We will share (with sharing) the document with workshop outcomes with you after the event.

 

8:00 - 9:00    Check-in and coffee* (early birds)

 

9:00 - 9:15   Opening and introduction

 

Torsten Schwede, SIB and University of Basel

Tony Sedgwick, The mighty advisor

 

 

 

9:15 - 10:00   Morning Keynote - Privacy and health: lessons from a pandemic

 

Marcel Salathé, École Polytechnique Fédérale de Lausanne  slides

 

 

 

10:00 - 10:20   Coffee*

 

10:20 -10:30  A few words about today's study

 

           Raminderpal Singh, Incubate.bio

 

10:30 - 12:00   Panel discussion - From theory to best practices: what doesn't work?

 

Johan van Soest, Maastricht University slide

Mark Ibberson, SIB Swiss Institute of Bioinformatics

David Manset, Be-ys

Ansgar Schuffenhauer, Novartis slide

Chair: Leila Alexander, SIB and University of Basel

 

 

 

12:00 - 13:30   Lunch*

 

13:30 - 14:15   Afternoon Keynote: Get ready for the new personal data economy

 

David Manset, Be-ys slides

 

 

14:15 - 15:30   Panel discussion - The problem is solved: 2025 and beyond?

Jean-Pierre Hubaux, École Polytechnique Fédérale de Lausanne  slide

Hartmut Schultze, Hewlett Packard Enterprise slide

Benoit Marchal, Partners For Patients

Chang Sun, Maastricht University

David Sturzenegger, Decentriq slide

Chair: Wen Hwa Lee, Action Against Age-related Macular Degeneration

 

 

15:30 -15:45   Our story so far - study updates

 

Raminderpal Singh and Leila Alexander

 

15:45 - 16:00   Coffee*

 

16:00 - 17:00   Call for action: Share without sharing study

 

Have your say in a group discussion: what do you think needs to happen?

 

17:00-17:15   Closing remarks

 

Tony Sedgwick, The mighty advisor

 

17:15   Drinks*

 

* Coffee, lunch and drinks are also the matchmaking opportunities, book your one-to-one meetings with other attendees.

 

For questions regarding registration, logistics, sponsorship or any other, please contact

sharewithoutsharing (at) gmail.com

 

Supported by

             

 

 

 

 

Organising committee

 

Leila Alexander, SIB and University of Basel

Cristina Golfieri, University of Basel

Raffaello Ferone, University of Basel

 

Website

 

Andrew Waterhouse, SIB and University of Basel

 

Program committee

Leila Alexander, SIB and University of Basel

Tony Sedgwick, The mighty advisor

Cristina Golfieri, University of Basel

Chang Sun, Maastrich University

Rhodri Saunders, Coreva Scientific

Raminderpal Singh, Incubate.bio

Wen Hwa Lee, Action Against Age-related Macular Degeneration

Joyce Kao, Open Innovation in Life Sciences

Torsten Schwede, SIB and University of Basel